24 Hour EEG

Tomorrow morning Baby Grace (there is an earlier post about this name. It is not her legal name and it is not her future name. But I felt very strongly she needed to be called something better than baby girl. she needed a social media name.) and I will return to the children's hospital wherein she stayed in PICU for 15 days over Christmas and New Year's. But this time it's just for a test and not in intensive care. 

Baby Grace's neurologist is testing for seizure activity. She had only displayed seizure activity shortly after being rewarmed from her 72 hour cooling after she was born. We have not seen anything that looked like seizure activity. But this test should give us a good picture and, hopefully, if she does not have seizures she can ween off of her seizure medication!! It's pretty heavy duty stuff so we would love to see how she is without dealing with the side effects of this medication.

Please be praying that if there is seizure activity, they catch it! Please also pray that she does not get sick from anything floating around in the hospital. The last thing we need is to end up in PICU again because we had to do a test. 

Please pray that she can sleep and be comfortable. And me as well. It should be routine, but I feel like, with this little lady, hardly anything will be routine!

Other prayer requests: For her facial muscles to gain strength so she can smile, coo, suck, and swallow. Pray for all out miracles here. If she could swallow, her whole life would change! We need a miracle here and we know that God is completely able. We cannot do anything, so he would get all the glory, as He should!

Please pray for approval of nursing hours. We would have a nurse come in and care for Baby Grace while we slept! Jason and I haven't slept in the same bed for months. We take shifts with the baby and hardly sleep more than 1 hour at a time. It would be amazing, wonderful to be able to sleep through the night knowing your baby is in good hands.

Please pray that the adoption process is miraculously sped up. We were originally told a couple months, now we have been told close to a year. I know there is a process but for Baby Grace, it would be so beneficial to her and us to focus all of our attention to therapy and doctor appointments rather than all the DSS things too.