New Day, New Diagnosis

Well, we didn't get the news we were hoping for. We did get news we expected. 

Cortical Vision Impairment.

Not completely blind.

Legally blind.

We had been preparing our hearts as much as we could for this possibility. But no amount of preparing could stop the breath leaving my body as he so flippantly, matter-of-fact uttered those words about my girl sound asleep in my arms, as if he was simply telling me her beautiful, big eyes are blue.

He saw her for 2 minutes. He didn't see her follow me around the room, focus on her dad, stare at her siblings, watch the leaves dancing in the trees, cloud floating in the sky, watch cartoons with her brothers. He doesn't know where she was and how far she's come. And he doesn't know what amazing plans the Father has for her. 

I am learning as a medical mama sometimes you have to get a diagnosis, and let it wash over you, and move on. One doctor's opinion. Medical coding for insurance. Defeat spoken over her by doctors already hasn't stopped her and they won't stop her now. 

On the bright side, she is now eligible for other services and therapies.

We are choosing to view this as an opportunity for access to further services and an opportunity for MIRACLES. We have no control over this, there is nothing we can do, really, to heal this. But we know the Good, Good Father who can. We are leaning into Him hard. And we believe He will continue to provide us with everything we need as we walk this journey with her. 

Realistically, nothing has changed for our girl. She's rolling and moving, looking and listening. She is growing and learning and making new brain connections like a champ. 

We also know there are so many services, therapies, and tools to help those with CVI, especially when started so young. 

Cortical Vision Impairment is not going to stop this brave girl. 

But still...please pray for miracles for her eyes and vision, for brain function that interprets vision.

For God's glory alone.